I wrote the short story CALM Connections, knowing that for some, the subject of people with intellectual disabilities would be a touchy one. In the fictional story, Paul has outburst issues, and his caregiver, Russell, assists him with this through the use of cranial implants. This innovative intervention has become the accepted science of the day, but a sequence of events occurs that cause changes for everyone involved.
Those who are not familiar with the population think of the cute Down syndrome child at a Special Olympic event that they’ve seen on television. The attitude that this group or related subject matter is too delicate to talk about comes more from ill-informed individuals. Anywho has worked in the field, and those with a friend or family member who has a disability understand that achievement levels, diagnosis, and on-going struggles are unique for each individual. There is no such thing as a cut-in-stone stereotype that applies to all who are intellectually disabled. The reality is that this population is as diverse as any group of people, as are their wants and needs.
After being a part of these individuals’ lives for more than thirty years, I’ve gained a wealth of knowledge and a unique perspective. This sometimes-emotional but always rewarding journey led me to write CALM Connections. From the staff that deals with daily hands-on tasks to those with administrative and clinical responsibilities, respect and kindness are the common factors that will lead to lasting advancements.
On the science side, there will always be advancements for those with disabilities. What we think of today as science fiction may very well be commonplace within a decade or less. Regardless of the nuances, tempering all advances with the need to see each person as an individual is essential. That way, there’s less chance to lose focus on the reason we are trying to help. If anything, there needs to be a lot more stories about the intellectually disabled. Handling the subject matter respectfully and increased exposure can only further educate and enrich us all.